RARE List™ The RARE List™ is comprised of approximately 7,000 different rare diseases and disorders affecting more than 300...
Tag Archive for: Orphan Disease
HS Patient Stories
HS BOOK SERIES: “I WILL NOT HIDE” Hidradenitis suppurativa (HS)
Our series of book releases for #HSAWARENESS tell the stories of Hidradenitis Suppurativa (HS) patients in vivid and personal narrative. Told by the patients themselves.
“HS is associated with a variety of concomitant and secondary diseases, such as obesity, metabolic syndrome, inflammatory bowel disease, e.g. Crohn’s disease, spondyloarthropathy, follicular occlusion syndrome and other hyperergic diseases.”
— European S1 guideline for the treatment of hidradenitis suppurativa/acne inversa