RARE List™ The RARE List™ is comprised of approximately 7,000 different rare diseases and disorders affecting more than 300...
Tag Archive for: Orphan Disease
HS Patient Stories
HS BOOK SERIES: “I WILL NOT HIDE” Hidradenitis suppurativa (HS)
Our series of book releases for #HSAWARENESS tell the stories of Hidradenitis Suppurativa (HS) patients in vivid and personal narrative. Told by the patients themselves.
“A current publication reported a delay of 7.2 years between the first signs of the disease and its diagnosis, a mostly critical period of time, which can lead to the known debilitating clinical picture.”
— The 2016 5th International Conference on Hidradenitis suppurativa or Acne Inversa