Washington DC & Hidradenitis suppurativa | Live by the bomb, die by the bomb

Hidradenitis Suppurativa ( Acne Inversa ) Patients call on the the United States of America’s Rare Disease Congressional Caucus for renewed leadership

Patients worldwide call on the United States to take the lead in support of the Rare Disease Congressional Caucus to engage and follow through on a new effort to realize Hidradenitis Suppurativa (HS) awareness with a patient-focused ethic. Measurable progress has started to gain momentum within research, treatment, education, and awareness. While we as patients continue to fight for support, acceptance, and understanding, there has never been more of a need for recognition and support by our leaders than today.

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