Awareness of the disease hidradenitis suppurativa and negative impact on the quality of life of patients does not exist in the Croatian public, said the president of the Coalition of NGOs in Health Ivica Belina, announcing the world dedicated to this leather disease and start the campaign “Stronger than HS”. The goal of the campaign to encourage patients to early detection doctor, earlier recognition of the disease and start treatment and exploring patients with the disease, and active involvement in the control of symptoms in order to improve and maintain your status.
It is no longer rare disease
Belina says that it is no longer rare, as they warned of the Croatian Association for rare diseases, because according to the World Health Organization, of which are affected about one percent of the population. Dermatovenerologinje others. Buttercup Jukic, from KBC Osijek and others. Željana Bolanča from KBC Sisters of Mercy in Zagreb, prof. Ph. D.. Rado Žic, with the Department of Plastic, Reconstructive and Aesthetic Surgery of the KB Dubrava pointed to the importance of early diagnosis and treatment, and collaboration with physicians, dermatologists, plastic surgeons and psychologists.
Hidradenitis suppurativa (HS, suppurative hidradenitis, acne inversa) is a chronic, immune-mediated, inflammatory and extremely painful skin disease. It is not infectious nor contagious. It is characterized by deep, painful, inflammatory lesions (skin damage) and purulent nodules (abscesses) in the regions rich scent glands and hair, such as the armpits, groin, buttocks, inner thighs, under the breasts and genital region, where most often. Due to Chronic, painful and unpleasant odor, HS has an extremely negative impact on quality of life and is most common and depression.
The disease usually occurs after puberty, with the highest incidence between 21 and 23 years of age, three times more often in women than in men. The system is an inflammatory disease in which the formation of the immune system involved with genetic factors. The presence of HS in the family was found in 40 percent of patients.
Creams, antibiotics, surgery
Treatment HS is a big challenge because the disease is often resistant to treatment options, and relapses are common. The choice of treatment depends on an objective assessment of severity of disease and subjective difficulties the affected. In general the most important measures is smoking cessation and weight loss. The treatment for topical preparations on the skin to lighter forms of the disease, or the application of drugs in the lesions. In severe forms of the disease are applied antibiotics, retinoids, cikloosporin, dapsone and biological therapy.
Surgical are disposed nodules and isolated fistula, are made incision, drainage and excision, and in severe forms and removing large parts of the affected skin. An important multidisciplinary approach diseased and treatment. Campaign “Stronger than HS” is conducted under the auspices of the Croatian society dermatovenereological LVH, a KoHOM and the Croatian Association of Primary Health Care.Planned to education for primary care physicians and dermatovenerology, empowerment workshops and advocacy for people with HS and other public actions in regional centers Croatian.
The disease begins with the appearance of deep, painful, inflammatory nodes that can later go into festering sores, making sinus channels under the skin, from which the fistula dripping and scars. Weight HS estimated Hurleyjevom classification. The most common is a mild form of the disease (about 68 percent of patients), moderate form has about 28 percent, and weigh about four percent of patients.
Risk factors – obesity and smoking
Risk factors are obesity and smoking. It is assumed that the obesity factor worsening of the disease, a frequent and with metabolic syndrome. In addition, obesity worsens the mechanical irritation of the skin in the folding areas, clogging the hair follicles and skin softening. Approximately 45-80 percent of patients with HS has a body mass index greater than 25, and greater than 30 associated with the most severe disease. Approximately 60-90 percent of patients with HS-TV are smokers, and 5-15 percent of former smokers. The nicotine in cigarettes has proinflammatory effects and thus aggravates the HS.
Other factors are provoking tight clothing, waxing, irritation deodorants and some medicines, for example oral contraceptives and retinoids, which can worsen the course of the disease.
The long road to diagnosis
A big problem is that the disease is often not recognized, and patients living with HS-player reluctant to talk about the symptoms. According to some studies, to the diagnosis of HS goes 8-12 years, and in this period the disease much worse. Website www.hsonline.com.hr is designed to support people affected by HS in Croatia. Provides information about the disease, symptoms, and experiences of patients. (D. PALIBRK)
Acne Inversa Diagnosis Treatment