28 February 2017 marks the tenth international Rare Disease Day coordinated by EURORDIS. On and around this day hundreds of patient organisations from countries and regions all over the world will hold awareness-raising activities based on the theme of research.Rare Disease
Rare Disease Day® 2017
I kept this secret for 20 years. The people I did tell thought it was something else and not Hidradenitis Suppurativa, Important People, Social Media, Support Groups, Topics, Facebook Support Group, Patient Blogs, Patient Stories, 0
ORIGINAL POSTED TO FACEBOOK 30 May 2015 @ 02:21 I have been posting items like these to my personal...
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Paige’s accounts of how our work got started and how it is has changed her life, as well as...
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A team of Swiss researchers at the École Polytechnique Fédérale de Lausanne (EPFL) made an interesting breakthrough with developing...
Hidradenitis suppurativa (HS) Non-Profit (501c3) 2017 Registration
We are currently fundraising for the Non-Profit (501c3) registration of HSAWARENESS.ORG and our growing NGO at large. We cannot realize this next and essential step for our critical work without you.
“I WILL NOT HIDE” Hidradenitis suppurativa (HS) Patient Stories Book Series
The “I WILL NOT HIDE” Hidradenitis Suppurativa book series is now available. These patient story volumes tell the stories of Hidradenitis Suppurativa (HS) patients in vivid and personal narrative. Told by HS patients themselves.
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