28 February 2017 marks the tenth international Rare Disease Day coordinated by EURORDIS. On and around this day hundreds of patient organisations from countries and regions all over the world will hold awareness-raising activities based on the theme of research.Rare Disease
Rare Disease Day® 2017
HS Patient Stories
HS BOOK SERIES: “I WILL NOT HIDE” Hidradenitis suppurativa (HS)
Our series of book releases for #HSAWARENESS tell the stories of Hidradenitis Suppurativa (HS) patients in vivid and personal narrative. Told by the patients themselves.
“Hidradenitis suppurativa was associated with a significantly increased risk of adverse CV outcomes and all-cause mortality independent of measured confounders. The risk of CV-associated death was higher in patients with HS compared with the risk in those with severe psoriasis. The results call for increased awareness of this association and for studies of its clinical consequences.”
— Alexander Egeberg, MD, PhD; Gunnar. H. Gislason, MD, PhD; Peter R. Hansen, MD, PhD, DMS