No reason for Hidradenitis Suppurativa patient HOPELESSNESS any longer

hidradenitis suppurativa awareness programs

“RAPID DEVELOPMENT OF THE FIELD”

I am not entirely sure there is any reason I can see for HOPELESSNESS anymore, only HOPE or infact elation that the globally we are now being recognized and research publishing is growing yearly by the over 100%.

This month for is epically historic for ‪#‎HidradenitisSuppurativa‬ patients and awareness. Not since 2005 and the “1st International Hidradenitis Suppurativa Research Symposium” has there been anything more important to have awareness for. Please share with all patients, it is a crime if this entire community is not aware of how hard we are being fought for.

Here are some of the latest developments:

The European Hidradenitis Suppurativa Foundation (EHSF) e.V. has been established and grown up, celebrating in 2016 its 5th anniversary.”

“The speakers will be motivating upcoming specialists to participate, but also young scientists and students working or wishing to work in this fascinating field in the future.”

“The huge developments which occurred in understanding HS pathophysiology and the needs of medical and psychological care of HS patients but also the targets for the years to come will be the central subjects of this scientific event.”

“Hidradenitis suppurativa/acne inversa (HS) has been until recently an orphaned disease. ”

“there is a general consensus that the growing level of knowledge makes it difficult to follow the rapid development in the field, even for experts. ”

“A first compound for conservative treatment has been clinically tested and already registered.” (Humira)

“Patients have been organised in several national self-aid groups.”

What do you think? This does not mean for us that right away our challenges disappear, but it does mean that our grandchildren will not live our realities. It does mean that the activity worldwide is on fire and HS is now a “Field” of study that young physicians are devoting their entire careers to. We have now acknowledgement and appreciation for the severity of what we live through.

Ron

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