Paula Pimentel, Co-Host of the Proof Negative Radio Show, interviews
HSAWARENESS.ORG founders Ron Bercume and Fawn Griswold.
“I have interviewed Ron Bercume and Fawn Griswold to discuss a condition that needs awareness. So many suffer alone and are undiagnosed.” ~Paula Pimentel
iTunes: The interview begins at approx. 20mins. Fawn and Ron discuss #HidradenitisSuppurativa and #HSAWARENESS.
WHAT IS HS?
Hidradenitis suppurativa (HS) is a chronic, relapsing and often debilitating skin disease. It typically presents as painful, fluid-filled lesions that most commonly affect the armpits, groin, genitals, thighs and backside areas of the body, but can occur wherever there is skin. There currently is no cure for HS and a combination of medication, surgery and lifestyle modifications are required to manage the condition.
HS while not “rare” remains classified as an orphan or rare disease to this day in some countries worldwide, specifically the United States. The 0.08%–4% prevalence of patient population does not support most definitions for rare or orphan diseases. But, the unmet needs for patients everywhere results in an orphan disease unique reality. This is a tragic phenomenon in healthcare for a minimum of approximately 70,000,000 world wide if going by just the minimum 1% prevalence.
Join us on Facebook at http://bit.ly/HSAWARENESS and Twitter at @HSisNOTu. For the latest HS News as it happens and for updates regarding Awareness efforts community wide please register your eMail here http://bit.ly/eMail4HS.
Learn more at http://hsawareness.org.
*HSAWARENESS.ORG does not provide medical advice, diagnosis or treatment.