Everyone has the opportunity to publish their story within our growing Organization. Although we as HS patients all share the same orphan disease and similar challenges, each story can be different and unique. Our stories are valuable for others seeking education, answers, and general awareness. To learn about the other existing coexisting diseases associated with HS/AI can lead to proper treatment for patients that do not have awareness and may be at risk. Our new Book Program kicks of with the releases of I WILL NOT HIDE, Hidradenitis Suppurativa (HS) Patient Personal Stories Volume 1 and Volume 2. Our Amazon and Kindle series of book releases for #HSAWARENESS tell the stories of Hidradenitis Suppurativa (HS) patients in vivid and personal narrative. Told by the patients themselves.
Obtaining knowledge of how others handle their pain can be useful – the mental health implications for all patients are the most debilitating aspects of this chronic skin disease. Online publishing on AMAZON is a focus, but the titles are available on HSSUPPORT.ORG at a discounted rate for patients. Our self publishing book project will be available in libraries, schools, book stores, online vendors and homes. The endless series and collection of patient stories will foster general awareness for a disease, and sales will directly benefit awareness programs such as these.
A HSAWARENESS.ORG special project for HSSUPPORT.ORG. Published both online and in print for patient and physician awareness and for fundraising that supports the sustainability of our hard work. 15 to 20 patients per volume will be featured. All profits from sales will go directly to establish and grow our organization.
Patient Fundraising Patient Stories