Facebook: Just search HShelp. I finally started a page. Please give a like I dont have many just started.
Hello I suffer from Hidradenitis suppurativa. I used to be ashamed of myself and the disease but I am not any longer. I have had this 26 years all over and it sucks. But I want to share what we go through everyday. What you see in this video I have to do at least 4 to 5 times a day. Hidradenitis suppurativa is one of the most painful diseases there is. A lot of people who suffer from this are ashamed or embarrassed. I used to be as well but not anymore. This is my life. I have to deal with this forever. I am hoping by spreading the word maybe someday scientist will figure this out.
Yes of course I go to the doctor. A few commenters mentioned I should. This stage of HS is not a topical skin condition. This stems from inside out. It is caused by an autoimmune disease we think. But soaps, skin creams, topicals do not work for this stage of HS. This is not like acne. But I do thank you all for you comments and tips. Keep them coming you guys are amazing!
Please visit my blog for more info and pictures.