“I have never known an injustice so cruel in my entire life, you will be able to say the same as well with your generosity of listening and understanding afforded to this suffering community of millions who have no choice.” ~R.Bercume, SWofHS
“The End of Hopelessness”, a Hidradenitis Suppurativa
PLEASE SHARE: “The #endofHOPElessness… #HidradenitisSuppurativa #Awareness #RareDisease #Documentary https://youtu.be/6a_YdwjL0OM ”
“To grasp just how much unbelievable hard work has been put into a common purpose by a lot of patients fighting to reach millions, millions who have no answers, no hope, and no quality of life that anyone should have to live with is simply humbling. We have had enough of the same as Hidradenitis Suppurativa patients – we will finally make a difference aggressively confronting the lack of awareness pandemic.”
The End of Hopelessness, a Hidradenitis Suppurativa Awareness Documentary, is to feature a 17 year old German patient, among others, whom Ron Bercume was blessed to interview and spend some time with while in Germany – he was in-fact, amongst other patients he met, the main purpose for the trip.
“This independent documentary film series is to bring light to the awareness distinctions between the USA and Germany – Europe at large. How much different it is here, how much at a high level they have more clarity as patients about their health and this disease culturally. As a result, more hope than an American patient has is obvious when speaking to them.”
The feature by necessity, being the first in a long long of gorilla-like video journalistic works, will also tell the recent story of Ron Bercume, a patient himself, that after keeping the Hidradenitis Suppurativa “secret” for 20 years had learned just a few months ago of why his body had been disfigured and torn apart since a child, riddled with stigmata like wounds and health compromised by other comorbidity and ailments of comorbid autoimmune nature.
“Not that awareness, education and treatments are much different or less problematic in Europe, there is simply less stigma, righteousness, taboo, cynicism, and emotional hopelessness than is status quo here in the states – to a certain degree.”
“Specifically for my friend who the entire HS Community will have an opportunity to know of through this special project very soon. And how blessed we are.”
Hidradenitis suppurativa (HS), or Acne Inversa; do you know what these Diseases are?
Daily we wage a war of ideas to end HOPELESSNESS and SUFFERING for millions through education around the world. We will do everything within our power to aid and bolster understanding, philanthropy, orphan research and compassion for those who are plagued by this chronic autoimmune disease, and other Orphan Disease communities that have very little or no resources at all.
Learn more at http://hsawareness.org.
Pronounced: HID-ra-den-EYE-tis SUP-you-rah-TEE-vah
Otherwise known as:
Acne Conglobata; Acne Inversa; Apocrine Acne; Apocrinitis; Fox-Den Disease; HS; HS Skin Disease; Pyodermia Significa Fistulans; Velpeau’s Disease, Verneuil’s Disease
*We doe not provide medical advice, diagnosis or treatment.Tags: Acne Inversa Treatment Verneuil’s disease