Hidradenitis suppurativa familial via Rare Disease List

RARE List™

The RARE List™ is comprised of approximately 7,000 different rare diseases and disorders affecting more than 300 million people worldwide. More RARE Facts™ can be found here. We are often asked why some common diseases are included on the RARE List™.  The answer is two fold:

  • This is a list of rare diseases defined in the United States where a prevalence of less than 200,000 cases is the primary criteria. Diseases such as malaria are quite common in some parts of the world, but are considered rare in the United States
  • Other diseases such as Cancer or Alzheimer’s are not rare diseases as a whole but certain forms of these disease are considered rare

Source: Rare Disease List


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