12-16-15 – Washington, D.C. – In a show of bipartisan support for the rare disease community, members of the House and Senate have come together to form the first bicameral Rare Disease Congressional Caucus.
The Caucus will be critical in raising awareness of the challenges faced by rare disease patients and serve as a platform for giving those individuals a voice in both the House and Senate. In addition, the Caucus will convene briefings throughout the year to educate Congressional staff on topics of importance to the rare disease community.
The Caucus will be co-chaired by Representatives Lance (R-NJ) and Crowley (D-NY) and Senators Hatch (R-UT) and Klobuchar (D-MN). – See more at: http://rareadvocates.org/everylife-foundation-for-rare-diseases-announces-formation-of-bicameral-rare-disease-congressional-caucus/#sthash.LEJ6AIfb.dpufPolitics