This is a support group for New Yorkers coping with the painful, often-debilitating, and seldom understood condition of Hidradenitis Suppurativa (HS). This is an opportunity for us to network as a community and gain friendship as well as valuable information about our condition and treatment modalities. By requesting to join this group, you are acknowledging that you are a New Yorker over the age of 18 or have parental consent. This group is open to New York HS sufferers as well as their friends and familiFacebook Facebook Support Group
Facebook Group: Hidradenitis Suppurativa New York State
HS Patient Stories
HS BOOK SERIES: “I WILL NOT HIDE” Hidradenitis suppurativa (HS)
Our series of book releases for #HSAWARENESS tell the stories of Hidradenitis Suppurativa (HS) patients in vivid and personal narrative. Told by the patients themselves.
“The results found for HS in our study showed greater QOL impairment than those found in some other dermatoses, including psoriasis,atopic dermatitis,acne vulgaris, alopecia, Darier disease, Hailey–Hailey disease, and even chronic urticaria. Wolkenstein et also noted a significantly greater HS impact on QoL than observed in chronic urticaria, atopic dermatitis, and psoriasis.”
— Ring HC, Theut Riis P, Miller IM, Saunte DM, Jemec GB