Facebook Group: Hidradenitis Suppurativa Australia/New Zealand

Welcome all HS sufferers!!! This page is specifically for New Zealand and Australia HS sufferers

I myself am a HS victim of 5+ years although i was only diagnosed with it a couple years ago. Im glad to have a loving, supportive partner who helps me and understands what i go through.
This page is to share our experiences and tough times fighting this ugly disease, to also share remedies/regiments that we might use in order to prevent HS.

BELOW ARE JUST A FEW FACTS ABOUT HS:
Hidradenitis suppurativa (HS) is a common (though rarely diagnosed), chronic skin disease characterized by clusters of abscesses or subcutaneous boil-like “infections” (oftentimes free of actual bacteria) that most commonly affects apocrine sweat gland bearing areas, such as the underarms, under the breasts, inner thighs, groin and buttocks.[1] The disease is not contagious. There are indications that it is hereditary among certain ethnic groups and autoimmune in nature. Onset is most common in the late teens and early 20’s.

HS outbreaks are painful in tender areas and may persist for years with interspersed periods of inflammation, often culminating in sudden drainage of pus. This process often forms open wounds that will not heal and frequently leads to significant scarring. For unknown reasons, people with HS develop plugging of their apocrine glands.[2] Incision and drainage procedures may provide symptomatic relief.

HS flares may be triggered by emotional/erotic stress, sweating, hormonal changes, heat and humidity, and the condition is exacerbated by friction from clothing.

Persistent lesions may lead to the formation of sinus tracts, or tunnels connecting the abscesses or infections under the skin.[3] At this stage, complete healing is usually not possible, and progression is variable, with some experiencing remission for months to years at a time, while others may worsen and require multiple surgeries. Bacterial infections and cellulitis (deep tissue inflammation) are other common complications of HS. Depression and physical pain are often seen with HS and can be difficult to manage.[4]

HS often goes undiagnosed for years due to embarrassment causing delay in seeking treatment. Due to the “invisible” nature of it, it is frequently misdiagnosed.[4] There is currently no known cure nor any consistently effective treatment. HS forums offer great insight.

Carbon dioxide laser surgery is currently considered the last resort. Lukewarm Sitz baths can provide great relief, gentle antiseptic skin cleansers and hydrogen peroxide assist in keeping affected areas free of bacteria.

HS is an orphan disease due to lack of publicity and sparse research efforts. The incidence of HS is not well established, but has been estimated as being between 1:24 (4.1%) and 1:600 (0.2%).[5] [medical citation needed]

Source: (3) Hidradenitis Suppurativa Australia/New Zealand

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