Hidradenitis Suppurativa (HS) Awareness Programs and Projects

Hidradenitis Suppurativa (HS) Awareness Programs

Innovating within Healthcare IT for Hidradenitis Suppurativa Patients

Developing dedicated web properties using the latest in Mobile-First Information Technologies. To address the very real unmet needs of HS patients globally our organization’s programs and projects are designed to provide both patient and physician with educational and resourceful materials, support and general awareness as a result.

Every project for HS patients that we produce is rooted in the following core philosophies to support our organization’s mission and purpose.

  • Engineered to be privacy centric with users in full control.
  • Engineered to be democratic and patient centric without compromise.
  • Engineered to be awareness and education centric for all patients, physicians, family and friends.
  • Engineered for patients to become more engaged in their own care.
  • Engineered to close communication gaps for isolated patients.
  • Engineered to help aid in decision-making by patients and their Healthcare providers.

Our work includes political and legislative activism, patient storytelling, creative videography and documentary film work, live patient webinars for awareness and education, big data research initiatives for patient quality of life awareness, patient conferences and many more projects and programs continually being planned for and executed.

Programs and Projects for Patient Support and Awareness

Hidradenitis suppurativa (HS) Awareness

HSAWARENESS.ORG

The Largest Online Hidradenitis suppurativa (HS) Resource Worldwide
A comprehensive curation of HS publishing activity is now in one place for the first time ever. A growing inventory of current and historical clinical Research Science, Politics, Legislation, Court Case Records, Important Individuals, Organizations, Social Media Activity and Patient Resources are now connecting everyone forever. This archive is growing and is available for all patients and physicians.

Hidradenitis Suppurativa (HS) Support Groups

HSSUPPORT.ORG

Hidradenitis suppurativa (HS) Patient Online Support Groups
The first and only dedicated Hidradenitis Suppurativa (HS) Online Support Group Community of it’s kind. Developed with Patient Support, Education and Awareness centric to its existence. Built by patients, for patients to be afforded a resource that many of us so desperately need and deserve.

I will not HIDE Hidradenitis Suppurativa Volume 3

“I WILL NOT HIDE” Hidradenitis Suppurativa (HS)

Patient Personal Storytelling For Awareness and Support
Obtaining knowledge of how others handle their pain can be useful – the mental health implications for all patients can be the most debilitating aspects of this disease. Our self-publishing book program with patient contributions is available in libraries, schools, bookstores, online vendors, and homes. Published both online and in print for patient and physician awareness.

Hidradenitis Suppurativa (HS) International Awareness Private Facebook Group

HSGLOBAL PRIVATE FACEBOOK GROUP

Hidradenitis Suppurativa (HS) International Awareness Private Facebook Support Group
This is a private group for patient support, research, science, and proactive efforts to make patient lives better. A closed Facebook Group as a compliment to our public Facebook public pages and our larger website platforms. A place to share other groups and projects with others in mutual love and support.

HS Awareness Video

CREATIVE VIDEOGRAPHY

Videography And Documentary Filmmaking
A growing collection of creative videography works published by HSAWARENESS.ORG. Recent studies report there is a delay of 8-10 years between onset of symptoms and diagnosis. Delayed diagnosis is a core problem that prevents open communication and a proper standard of treatment for HS patients. In an effort to bring education, awareness, and support to everyone whose lives have been impacted by Hidradenitis suppurativa.

Hidradenitis suppurativa (HS) Doctor

HSDOCTORS.ORG (coming soon)

Known Dermatologists And Physicians That Treat Hidradenitis suppurativa (HS) patients
Patients review and report on their care, both successful and unsuccessful experiences for current and future generations to leverage as a much-needed tool and resource for effective care. Recognition of HS by qualified medical professionals will create substantial awareness and make it possible for patients to be treated properly with Evidence-Based Medicine at the inception of the disease.

FLARE - Hidradenitis suppurativa (HS) Digital Magazine

FLARE. (coming soon)

A Quarterly Magazine Published By Hidradenitis suppurativa (HS) Patients
The bulk of each issue quarterly will be a high-level digest and/or summary of the hard work of our growing organization. To feature what we aggressively publish on daily for #HSAWARENESS and #HSSUPPORT: our patient interviews in the spirit of journalism, our documentary creative film work, global affairs and news, updates on our special programs and projects, and of course educational features as we track what is current and evolving in science and research globally.

#HSAWARENESS RADIO (coming soon)

Hidradenitis suppurativa (HS) Awareness On The Radio
We can actively and long-term take on a new effort to acquire participation and support for our awareness efforts from radion stations. By pursuing donated low-demand airtime to run 10, 30, or 60-second spots on radio stations around the world this special program has potential to create real and lasting change.

HSAWARENESS.ORG | Fighting for Hidradenitis suppurativa (HS), a.k.a Acne Inversa Patient and Doctor Awareness ©2017 hidradenitissuppurativaawareness.org  All Rights Reserved. Your use of this website constitutes explicit agreement to our Terms of Use and Privacy Policies. This website does not provide medical advice, diagnosis or treatment.

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